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12.09.2017

DayOne Experts at EMBO/Basel Life: “Ethics of data in a world of personalized health”

The revolution in human genetics is helping usher in genome-based therapies and the practice of Precision Medicine. This change comes with an avalanche of personal data and the digitisation of traditional healthcare data.

The next big breakthroughs for healthcare will depend on the efficient capture and analyses of this information for biomarkers for a range of human diseases – like diabetes, hypertension, and dementia. On the other side lies the contentious issue of privacy intrusion should this data be made public where individual liberties may be at stake.

Striking the balance between public health needs and individual privacy is key for all stakeholders (health insurance companies, hospitals, patients, entrepreneurs) for this field to move forward. The speakers for this session, which is supported by BaselArea.swiss and Swiss TPH, will speak on these issues and from different perspectives, followed by a panel discussion to engage all participants on the future of healthcare.

When: Tuesday, 12 September 2017 - 18:00
Where: Congress Center Basel, Room: Montreal, Messeplatz 21, Basel

Program

17:45	Welcome drinks
18:00	Opening remarks: Michele Garfinkel – European Molecular Biology Organization (EMBO), Germany Thomas Brenzikofer – DayOne Labs, BaselArea.Swiss, Switzerland Marcel Tanner – Swiss Tropical and Public Health Institute (Swiss TPH), Switzerland
18:20	Introduction and short presentation: Fred Binka – School of Public Health, University of Ghana, Ghana Christiane Pauli-Magnus – Dept. of Clinical Research, University of Basel, Switzerland Effy Vayena – Health Ethics and Policy, University of Zurich, Switzerland Susanne Baars – Human Genome Foundation, Netherlands
19:20	Panel discussion & audience participation: Marcel Tanner – Swiss Tropical and Public Health Institute (Swiss TPH), Switzerland Effy Vayena – Health Ethics and Policy, University of Zurich, Switzerland Susanne Baars – Human Genome Foundation, Netherlands Paul Wicks – PatientsLikeMe Thomas Bachofner, CEO Swisscom Heatlh AG
20:00	Apéro (drinks and food provided in Swissôtel Le Plaza Basel)

Registration is free of charge but compulsory by 7 September. Seats are limited.

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